Order ID 53563633773 Type Essay Writer Level Masters Style APA Sources/References 4 Perfect Number of Pages To Order 5-10 Pages Description/Paper Instructions
Data Sharing And Bioinformatics
urgent
discussion
The exchange of data has many implications, some beneficial, but some risky. Consider the exchange of sensitive information, a dilemma that has a seemingly simple solution: That information should be protected. Yet, in a public health context, how does privacy complicate the possibility of improving outcomes across a population? For example, how can data drawn from genomic sequencing be protected and contribute to the body of knowledge? In this Discussion, you explore a similar question.For this Discussion, consider the following scenario:
You are a nurse geneticist who is working for a teaching and research hospital. Your position is to promote the provider use of genetic testing for a specific drug trial. While most physicians are eager to participate in the research, a provider who primarily treats patients with HIV is reluctant to use the trial on their patients and feels utilizing the database system is a violation of HIPAA.
As a nurse leader, describe the recommendation you might make to this provider and explain why.
· Search the Walden Library for a peer-reviewed journal article that contains research related to precision medicine to support your recommendation to the provider.
· The Walden Library recommends the following:
o Navigate to the Nursing Research databases in the Walden Library.
o Select a database with which to start. You can try more than one.
o Perform a basic search: precision medicine. Do not select any limiters yet.
o Look at initial results, particularly if there are any recent books that might be helpful. Note that you can search within e-books for particular terms.
o Add a second concept in Box 2 to focus your search. It helps to keep concepts separate, especially when multiple boxes are provided.
o Example: HIPPA or Health Insurance Portability and Accountability Act
o At this point, look at the first page or two of results and refine depending on what you find. Notice any other relevant words or combinations of words that might focus your search further. Possible suggestions: privacy, security, confidentiality, ethics.
Mark A. Rothstein. Structural Challenges of Precision Medicine. The Journal of Law, Medicine & Ethics, 45 (2017): 274-279. doi: 10.1177/1073110517720655
Wolf, L. E., Hammack, C. M., Brown, E. F., Brelsford, K. M., Beskow, L. M., Wolf, S. M., Clayton, E. W., & Lawrenz, F. (2020). Protecting Participants in Genomic Research: Understanding the “Web of Protections” Afforded by Federal and State Law. Journal of Law, Medicine & Ethics, 48(1), 126–141. https://doi-org.ezp.waldenulibrary.org/10.1177/1073110520917000
o To apply limits, scroll down in the left column to limit by date (last 5 years) and limit the results to peer-reviewed scholarly journals only. It helps to do this after you know you have performed a successful search and identified possible synonyms and sub-topics.
o To retrieve the full text of individual items, click on the Find@Walden button and follow the prompts. Sometimes this step takes persistence, since there are many different publishers supplying content to these databases.
By Day 3 of Week 5
Post a response that addresses in general and the research trial described in the scenario specifically. Be specific. Your post should include your approach for facilitating the reluctant physician’s use of the trial drug and reporting the needed data. Justify your role as the nurse informaticist as it pertains to the genetics trial drug use and reporting described in the scenario.
McBride, S., & Tietze, M. (2019). Nursing informatics for the advanced practice nurse: Patient safety, quality, outcomes, and interprofessionalism (2nd ed.). New York, NY: Springer Publishing.
· Chapter 11, “Electronic Health Records and Health Information Exchanges Providing Value and Results for Patients, Providers, and Healthcare Systems” (pp. 248–271)
· Chapter 13, “Public Health Data to Support Healthy Communities in Health Assessment Planning” (pp. 296–331)
· Chapter 15, “Personal Health Records and Patient Portals” (pp. 354–375)
· Chapter 16, “Telehealth and Mobile Health” (pp. 376–397)
· Chapter 22, “National Prevention Strategy, Population Health, and Health Information Technology” (pp. 532–555)
· Chapter 25, “Genomics and Implications for Health Information Technology” (pp. 610–637)
Note: Chapters 11 and 13, which were assigned in the previous week, are also applicable this week and are listed here for review purposes.
Shen, N., Bernier, T., Sequeira, L., Strauss, J., Silver, M. P., Carter-Langford, A., & Wiljer, D. (2019). Understanding the patient privacy perspective on health information exchange: A systematic review. International Journal of Medical Informatics, 125, 1–12.
Baseman, J. G., Revere, D., & Painter, I. (2017). Big data in the era of health information exchanges: Challenges and opportunities for public health. Informatics, 4(39), 1–10.
Orlova, A. O., Dunnagan, M., Finitzo, T., Higgins, M., Watkins, T., Tien, A., & Beales, S. (2005). An electronic health record-public health (EHR-PH) system prototype for interoperability in 21st century healthcare systems. AMIA Annual Symposium Proceedings, 2005, 575–579. Retrieved from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1560434/
Founds, S. (2018). Systems biology for nursing in the era of big data and precision health. Nursing Outlook, 66(3), 283–292.
Calzone, K. A., Kirk, M., Tonkin, E., Badzek, L., Benjamin, C., & Middleton, A. (2018). The global landscape of nursing and genomics. Journal of Nursing Scholarship, 50(3), 249–256.
Cheng, M. L., & Solit, D. B. (2018). Opportunities and challenges in genomic sequencing for precision cancer care. Annals of Internal Medicine, 168(3), 221–222.
RUBRIC
QUALITY OF RESPONSE NO RESPONSE POOR / UNSATISFACTORY SATISFACTORY GOOD EXCELLENT Content (worth a maximum of 50% of the total points) Zero points: Student failed to submit the final paper. 20 points out of 50: The essay illustrates poor understanding of the relevant material by failing to address or incorrectly addressing the relevant content; failing to identify or inaccurately explaining/defining key concepts/ideas; ignoring or incorrectly explaining key points/claims and the reasoning behind them; and/or incorrectly or inappropriately using terminology; and elements of the response are lacking. 30 points out of 50: The essay illustrates a rudimentary understanding of the relevant material by mentioning but not full explaining the relevant content; identifying some of the key concepts/ideas though failing to fully or accurately explain many of them; using terminology, though sometimes inaccurately or inappropriately; and/or incorporating some key claims/points but failing to explain the reasoning behind them or doing so inaccurately. Elements of the required response may also be lacking. 40 points out of 50: The essay illustrates solid understanding of the relevant material by correctly addressing most of the relevant content; identifying and explaining most of the key concepts/ideas; using correct terminology; explaining the reasoning behind most of the key points/claims; and/or where necessary or useful, substantiating some points with accurate examples. The answer is complete. 50 points: The essay illustrates exemplary understanding of the relevant material by thoroughly and correctly addressing the relevant content; identifying and explaining all of the key concepts/ideas; using correct terminology explaining the reasoning behind key points/claims and substantiating, as necessary/useful, points with several accurate and illuminating examples. No aspects of the required answer are missing. Use of Sources (worth a maximum of 20% of the total points). Zero points: Student failed to include citations and/or references. Or the student failed to submit a final paper. 5 out 20 points: Sources are seldom cited to support statements and/or format of citations are not recognizable as APA 6th Edition format. There are major errors in the formation of the references and citations. And/or there is a major reliance on highly questionable. The Student fails to provide an adequate synthesis of research collected for the paper. 10 out 20 points: References to scholarly sources are occasionally given; many statements seem unsubstantiated. Frequent errors in APA 6th Edition format, leaving the reader confused about the source of the information. There are significant errors of the formation in the references and citations. And/or there is a significant use of highly questionable sources. 15 out 20 points: Credible Scholarly sources are used effectively support claims and are, for the most part, clear and fairly represented. APA 6th Edition is used with only a few minor errors. There are minor errors in reference and/or citations. And/or there is some use of questionable sources. 20 points: Credible scholarly sources are used to give compelling evidence to support claims and are clearly and fairly represented. APA 6th Edition format is used accurately and consistently. The student uses above the maximum required references in the development of the assignment. Grammar (worth maximum of 20% of total points) Zero points: Student failed to submit the final paper. 5 points out of 20: The paper does not communicate ideas/points clearly due to inappropriate use of terminology and vague language; thoughts and sentences are disjointed or incomprehensible; organization lacking; and/or numerous grammatical, spelling/punctuation errors 10 points out 20: The paper is often unclear and difficult to follow due to some inappropriate terminology and/or vague language; ideas may be fragmented, wandering and/or repetitive; poor organization; and/or some grammatical, spelling, punctuation errors 15 points out of 20: The paper is mostly clear as a result of appropriate use of terminology and minimal vagueness; no tangents and no repetition; fairly good organization; almost perfect grammar, spelling, punctuation, and word usage. 20 points: The paper is clear, concise, and a pleasure to read as a result of appropriate and precise use of terminology; total coherence of thoughts and presentation and logical organization; and the essay is error free. Structure of the Paper (worth 10% of total points) Zero points: Student failed to submit the final paper. 3 points out of 10: Student needs to develop better formatting skills. The paper omits significant structural elements required for and APA 6th edition paper. Formatting of the paper has major flaws. The paper does not conform to APA 6th edition requirements whatsoever. 5 points out of 10: Appearance of final paper demonstrates the student’s limited ability to format the paper. There are significant errors in formatting and/or the total omission of major components of an APA 6th edition paper. The can include the omission of the cover page, abstract, and page numbers. Additionally the page has major formatting issues with spacing or paragraph formation. Font size might not conform to size requirements. The student also significantly writes too large or too short of and paper 7 points out of 10: Research paper presents an above-average use of formatting skills. The paper has slight errors within the paper. This can include small errors or omissions with the cover page, abstract, page number, and headers. There could be also slight formatting issues with the document spacing or the font Additionally the paper might slightly exceed or undershoot the specific number of required written pages for the assignment. 10 points: Student provides a high-caliber, formatted paper. This includes an APA 6th edition cover page, abstract, page number, headers and is double spaced in 12’ Times Roman Font. Additionally the paper conforms to the specific number of required written pages and neither goes over or under the specified length of the paper. GET THIS PROJECT NOW BY CLICKING ON THIS LINK TO PLACE THE ORDER
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